Epilepsy SUCKS (Nice title, huh?)

I am drowning again

The water closing over my head

Cutting off sight and sound

The deep dark surrounding me


The dream is continuous

It creeps upon me deep in the night

I can’t hold my breath anymore

I just want it to stop


Every moment the fear

Takes control of my life

Super critical Mom does one thing at a time

Can’t live life waiting for shoe to drop


Country songs say “How Can I Help You Say Goodbye”

Goodbye to a life I knew

Can’t let go

Want that life back


Crying all the time

But no one knows

Can’t let them see

Because we can do this, we have to


Little Angel

Already my miracle

Just goes away for moments

Want those moments back


Short as they are

I miss her then

I am frightened

How do we do this forever?


Breaks my heart

In little tiny pieces

She awakes and says

“What’d I do?”


Perfect angel

I love you more than life

And my tears will float us

To a better life


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  1. I am sure it does suck. I am sure you will do everything you can though so that Ladybug doesn’t feel that way.

  2. that made me cry

  3. Sweetheart, epilepsy is the pits. Keep in mind that it could be much worse. Much worse. I’m sorry that you have to deal with that. I’m sorry that Ladybug will have to deal with it.

    Jumping Bean Butterball is adorable. Sounds like the delivery was not too horrendous. And, Sweet Ladybug looks like she is handling it nicely. You even have a wonderful new camera to record it all.

    Hold on, Vixen. Everything is going to be OK. And, you are a strong lady, you know you are.
    (your poetry is pretty good! does sadness help us write?)
    Hugs to you.

  4. this is beautiful. Im sorry for your pain. I cant imagine being in your position.
    .-= Muscle ForceMax´s last blog ..How To Build Muscles =-.

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